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<rss xmlns:dc="http://purl.org/dc/elements/1.1/" version="2.0"><channel><atom:link rel="hub" href="http://tumblr.superfeedr.com/" xmlns:atom="http://www.w3.org/2005/Atom"/><description>24 years old with Crohn’s Disease. I love photography, music, TV, and baseball (Phillies). I’m a very happy person. Life threw me a curveball and I’m working through it. 
:)</description><title>CShitz</title><generator>Tumblr (3.0; @cshitz)</generator><link>http://cshitz.tumblr.com/</link><item><title>sami-shortcake:

Spread the word. #yearforacure #crohns #colitis...</title><description>&lt;img src="http://25.media.tumblr.com/98d4e8184d92cc6d0e87149547daf3ef/tumblr_mjnwd5lLhh1qkz26lo1_500.jpg"/&gt;&lt;br/&gt;&lt;br/&gt;&lt;p&gt;&lt;a class="tumblr_blog" href="http://sami-shortcake.tumblr.com/post/45353950522/spread-the-word-yearforacure-crohns-colitis" target="_blank"&gt;sami-shortcake&lt;/a&gt;:&lt;/p&gt;
&lt;blockquote&gt;
&lt;p&gt;Spread the word. #yearforacure #crohns #colitis #ibd #rheumatoidarthritis&lt;/p&gt;
&lt;/blockquote&gt;</description><link>http://cshitz.tumblr.com/post/45551033182</link><guid>http://cshitz.tumblr.com/post/45551033182</guid><pubDate>Sat, 16 Mar 2013 22:39:11 -0400</pubDate></item><item><title>Photo</title><description>&lt;img src="http://24.media.tumblr.com/325ab716a0443681c063ace02a114b1c/tumblr_mjs83xqWSz1rnyqono1_500.jpg"/&gt;&lt;br/&gt;&lt;br/&gt;</description><link>http://cshitz.tumblr.com/post/45550691693</link><guid>http://cshitz.tumblr.com/post/45550691693</guid><pubDate>Sat, 16 Mar 2013 22:34:41 -0400</pubDate></item><item><title>Photo</title><description>&lt;img src="http://24.media.tumblr.com/f22751740555010ae47902316e951b76/tumblr_mjs8wtRLoE1qkzo0no1_500.jpg"/&gt;&lt;br/&gt;&lt;br/&gt;</description><link>http://cshitz.tumblr.com/post/45550538821</link><guid>http://cshitz.tumblr.com/post/45550538821</guid><pubDate>Sat, 16 Mar 2013 22:32:39 -0400</pubDate></item><item><title>wearwhatyouwatch:

Inspired by Jensen Ackles as Dean Winchester...</title><description>&lt;img src="http://24.media.tumblr.com/69a27a041a5bd96935fb20625b082745/tumblr_mjkk01ENSv1rq9djho1_500.jpg"/&gt;&lt;br/&gt;&lt;br/&gt;&lt;p&gt;&lt;a href="http://wearwhatyouwatch.tumblr.com/post/45549809435/inspired-by-jensen-ackles-as-dean-winchester-on" class="tumblr_blog" target="_blank"&gt;wearwhatyouwatch&lt;/a&gt;:&lt;/p&gt;

&lt;blockquote&gt;&lt;p&gt;Inspired by Jensen Ackles as Dean Winchester on “Supernatural” - &lt;a href="http://www.polyvore.com/cgi/set?id=75262613" target="_blank"&gt;Shopping info&lt;/a&gt;!&lt;/p&gt;&lt;/blockquote&gt;</description><link>http://cshitz.tumblr.com/post/45550484848</link><guid>http://cshitz.tumblr.com/post/45550484848</guid><pubDate>Sat, 16 Mar 2013 22:31:56 -0400</pubDate></item><item><title>How do you like Remicade? My boyfriend was just diagnosed with Crohn's disease and his doctor said taking it could cause lymphoma but not taking it could be worse. :( What do you suggest?</title><description>&lt;p&gt;At first I didn’t think it was working. It takes at least the first 3 starter doses then 3 after that. So about 6 first doses. It’s helped me a ton. I still have occasional pain and all but that’s always gonna happen. It just has to be maintained well by the doctor too. I’ve been on it over a year now. I recommend definitely giving it a shot. As far as the Lymphoma I haven’t had any signs or issues. Hope this helps. I wish him luck and here if either of you want to talk.&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/22624325598</link><guid>http://cshitz.tumblr.com/post/22624325598</guid><pubDate>Mon, 07 May 2012 21:11:48 -0400</pubDate></item><item><title>A Girl Living with Crohn's Disease. My Journey from the Beginning until Now (plus some).</title><description>&lt;p&gt;&lt;span class="Apple-style-span"&gt;&lt;span&gt;I was 16 when I first got &amp;#8220;symptoms&amp;#8221; of Crohn&amp;#8217;s Disease. I didn&amp;#8217;t know then what it was, but I did know it was painful and embarrassing. It started out as regular stomach pain, but then it lasted over days. I ignored it for a while because it only seemed to happen when I was close to getting my period or right after. Then it started to happen after I would eat, in the middle of the night, while I was at work, or just at random times in the day. My doctor suggested that I had IBS (which at 16 wasn&amp;#8217;t fun to have. It was embarrassing). All I understood was that I had to go to the bathroom more than normal and diarrhea was regular as well as mild pain. So a little later I went to see a &amp;#8220;stomach doctor&amp;#8221; and got a colonoscopy and an endoscopy done. Since everything was &amp;#8220;seemingly normal&amp;#8221; then, the DR said I had nothing to really worry about but to just be careful with what I ate and keep an eye on my activity. He also mentioned something called IBD and Crohn&amp;#8217;s Disease, which I paid no mind to because I was not informed that this is what I had. I simply left and thought I had IBS, which if you take Immodium it could be controlled and I&amp;#8217;d be fine, that was at 17.&lt;/span&gt;&lt;/span&gt;&lt;/p&gt;
&lt;div&gt;&lt;span&gt;&lt;br/&gt;For a while it wasn&amp;#8217;t so bad. I didn&amp;#8217;t have many symptoms, only minor stomach pains and the occasional diarrhea. I thought it was over with and I could do normal things without having to worry about a bathroom being nearby. I would go on random road trips that lead anywhere, ate everything/anything I wanted and did stuff a &amp;#8220;normal&amp;#8221; teenager would do. I would go out with my boyfriend and friends, go to the beach every Friday in the Summer. Go to amusement parks, you name it, I did it. I loved waking up and just going. Not having to worry about anything holding me back. I was living a great, fun, adventurous, young life&amp;#8230;.That all changed when I turned 20. Things got a lot worse, the pain mainly. My primary DR just kept saying I had IBS and put me on different medicines, all that made me sick. I then started to get severe migraines and I&amp;#8217;ve never had them before. They would get so bad I would have to stay in bed all day in complete darkness and with as little sound as possible. Of course, more medicine was given. I hate medicine. I hate everything about it, from having to take it, to remembering to take it, to side effects, etc. After a couple of months of trial and error with medicines, I just gave up. Nothing was changing, and I was getting pissed with medicine. Randomly, my pain stopped. The consistency of using the bathroom after every meal, or during the night did not, but I just resulted that back to my IBS and would take Immodium, which didn&amp;#8217;t always help. I would be hanging out with my boyfriend, having a good time and it would hit. I&amp;#8217;d have to leave to go home and spend the rest of the day/night there because there was nothing I could do about it. What was worse was when I would go to sleep over my bfs house. During the night I&amp;#8217;d constantly be getting up to go poop. It was so frustrating. Then it was always on the back of my mind, and the famous &amp;#8220;what if&amp;#8221;. It made things hard on me and him. He didn&amp;#8217;t really understand and I didnt want to tell him I was pooping all the time. I would just say I&amp;#8217;m sick. We fought alot over it. That I was barely hanging out with him, I never went out, etc. Granted I&amp;#8217;ve been with him since we were 14, its still embarrassing to tell. The diarrhea started to slow down, so I started to feel a little better and was able to go out and do things, but I still had it on the back of my mind, stressing me out. What if we&amp;#8217;re driving and I have to go all of a sudden? Do I pull over on the side of the road. No matter what we did I was always with the What if? My friends didn&amp;#8217;t understand either. I would miss birthday parties, random nights out, get togethers. They all thought it was because of my BF of because I just didn&amp;#8217;t want to. OF COURSE I WANTED TO. I&amp;#8217;m young, why would I want to sit at home, in bed, by myself all the time? I wish I could have went out every weekend and did stuff. My friends eventually stopped inviting me places, and slowly stopped talking to me everyday. I didn&amp;#8217;t know what was going on. My DR wasn&amp;#8217;t doing anything, my mind was making me go crazy and my stomach and bowels were ruing my YOUNG life. My friends were writing me off, my BF still by my side but frustrated and seeming to slowly back away, everything was just getting worse (age 20-23). It just didn&amp;#8217;t seem fair. 3-6 years of my life I struggled with this embarrasing condition that I had no control over and no idea how to avoid it. My doctor was doing nothing, my family didn&amp;#8217;t know and my friends didn&amp;#8217;t seem to fully grasp what was going on, but then again, at that point, neither did I. I had good days and bad days. At that time more good then bad. Especially thinking about it now. The pain was barely there, and the diarrhea slowed, but I did go to the bathroom a lot more then normal. But I was still able to eat anything and go out and be some what ok.&lt;/span&gt;&lt;/div&gt;
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&lt;div&gt;&lt;br/&gt;&lt;div&gt;Then December 31, 2010 came. It was early in the afternoon and it struck out of no where. The worst stomach pain I could ever imagine, it was like someone was repeatedly stabbing me with a knife, and twisting it, while punching me in my gut. I was hunched over in bed, screaming and crying worse then I ever have before. I had no idea what was going on and I was so scared. I was in the bathroom throwing up to the point where I couldn&amp;#8217;t throw up anymore. I was pooping, I was peeing, screaming, crying. I felt like I was dying. My mom rushed me to the hospital where the ER waiting room was packed. It took forever (what seemed like it to me) to get back in the actual ER. Once back there I got an IV, pain medicine and this awful prep/drink stuff (barium) for a CT scan. It was the worst tasting stuff ever. Granted I did have it once before back when I was 17 for another CT scan. But its a taste you never get use to and you never like. During this time since I was given so much pain medicine, I could not keep my eyes open or talk, yet my mind wanted to talk and I wanted to open my eyes. I wanted to talk to the nurses and doctors that came in, I wanted to be AWAKE. I hated and still hate feeling immobilized like that. Hours passed, I was in a somewhat sleep, and I was &amp;#8220;high out of my mind&amp;#8221;. Even though the pain medicine took the pain away, I didn&amp;#8217;t like how it was making me feel otherwise. Once I was able to keep my eyes open for more then 5 minutes, the pain came back and so did more medicine. Then again with the immobilized feeling. New Years Eve, in the hospital, at 23. Who wants that? No one. I had plans, and now I couldn&amp;#8217;t do them. I tried explaining to my boyfriend, but he didn&amp;#8217;t understand, and it kind of seemed like he didn&amp;#8217;t care. He just got mad and went on with his day. It hurt me that he didn&amp;#8217;t visit and didn&amp;#8217;t seem to care that I was in the hospital and felt like I was dying. Unsure of what was going on with me, and not getting the proper answers, in walks this doctor, and he sat down. I was in and out of sleep because of the medication. He was explaining to my mom about this thing called Crohn&amp;#8217;s Disease and he was sure that was what I had and what was going on. He spent a good hour with us explaining everything, answering all questions, etc. He even made a couple jokes with us. To finally know what I had and what was making me feel how I was, was a relief. What wasn&amp;#8217;t a relief was the fact that I had to stay over night in the hospital and who knew for how long. I couldn&amp;#8217;t eat or drink and I had to get lots of blood taken and tests and X-Rays done. Those 3 days in the hospital felt like forever. My family visited. My boyfriend and friends did not. Another thing that hurt. I was put on medications before I left. Prednisone, and Azathioprine. &lt;/div&gt;
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&lt;div&gt;I had no choice with the prednisone and I read the side effects of it. Azathioprine made me sick, constantly nauseous. It was awful. I quickly stopped that.&lt;/div&gt;
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&lt;div&gt;Feb 20th. Now what I know of as a &amp;#8220;Flare-Up&amp;#8221; happened, again. Same thing as the first time. This time I spent 5 nights and 6 days in the hospital. This time my dad stayed in the hospital bed next to me so I wouldn&amp;#8217;t be alone. More tests, X-Rays and bloodwork. This time my Gastroenterologist mentioned biologic treatments: Remicade, and Humira. He opted to go with Remicade. He informed me it wouldn&amp;#8217;t start to take affect until after the 6th treatment. It seemed like so far away but finally some hope. Being in the hospital sucks, but the staff was so nice and some of the doctors that came in were very easy on the eyes lol, even if I wasn&amp;#8217;t. No one looks good in the hospital lol.&lt;/div&gt;
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&lt;div&gt;March 2, 2011. Remicade treatment #1. I was so excited for this day to come. I already had a little over 2 months on Prednisone and as bad as a drug that it is, it was helping a lot. I went to Cooper Digestive Health Institute for it. The staff has to be the nicest staff I&amp;#8217;ve ever met in my life. Yes it&amp;#8217;s their job, but its more then that to them, you can tell they actually care. Some people are just in it for the money, not this staff. I felt like I was at home. &lt;/div&gt;
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&lt;div&gt;March was a great month for me. No pain, no constant bathroom breaks, I was actually able to get up and go out and do things. I didnt even have the &amp;#8220;what if&amp;#8221; on my mind. I finally felt normal again. My closest/oldest friends still didn&amp;#8217;t understand what was going on. I explained to them what I had and sure they listened, but I dont know if they fully understood. No one really understands unless you yourself are sick, or someone very close to you is sick. Even then you never really know. My boyfriend understood alittle more then he did. But same as the friends. One friend in particular (I&amp;#8217;m sure she knows who she is) was there for me the most. Emotionally too which I needed. We&amp;#8217;ve only been friends for a couple of years but she was always asking me how I was doing, understanding when I was sick, not afraid to be around me. She&amp;#8217;s gone through a lot in her life too, she understands. Granted I knew what I had, I still didnt fully understand everything. I was still learning what I could and could not eat. How much stress I could handle (which is like none at all). But the worst thing of all on top of Crohns, was my Anxiety. Panic attacks. Its so bad. Til this day its still bad. I panic about everything. I have constant anxiety about everything. I worry to much&amp;#8230;..more on that later. &lt;/div&gt;
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&lt;div&gt;Lets just say, since I was diagnosed with Crohns March 2011 was my best month, still to date.&lt;/div&gt;
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&lt;div&gt;April 27th, another flareup. another 3 nights in the hospital. By now I&amp;#8217;m use to the hospital. I knew everything I was going to go through and that I would be staying more then 1 night. Most of the nurses know me by now, sad I know lol, and I know them. Every time I&amp;#8217;ve been in the hospital I&amp;#8217;ve had the same nurse every time at least 1 day/night there. I even have a Hospital Bag packed all the time just incase I have to go again. It has everything I&amp;#8217;d need for about 2 days in the hospital. In my car, I have an Emergency Bag (extra clothes, toiletries, etc). Some people think I&amp;#8217;m crazy for it, but I feel comfortable knowing they are there. I need them. If I didnt have certain things EXACTLY how I want them, I panic. &lt;/div&gt;
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&lt;div&gt;My panic attacks are my normal now. Every little thing freaks me out. Mainly my Crohn&amp;#8217;s. I&amp;#8217;m always afraid I&amp;#8217;ll get the awful pain when I go out, I&amp;#8217;ll have to go to the bathroom at any second, or I&amp;#8217;ll get a flare up thats so bad Ill have to go to the hospital&amp;#8230;..again. Even just going out with my friends I get nervous. My mind starts racing and I can&amp;#8217;t relax. I hate it. I&amp;#8217;ve never had it before. Sometimes even at work I&amp;#8217;ll get a mild panic attack. I&amp;#8217;ve learned ways to control them and let them pass without resulting to medicine. But sometimes I can&amp;#8217;t and I have to take my medication for it. One medicine I am thankful for.&lt;/div&gt;
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&lt;div&gt;June. I started Methotrexate. I am not good with needles. Especially if I have to do them myself. At first they were fine, but 6-8 weeks into it, I got really sick after the injection. I would have every flu like symptom, and nausea like no other. Another medication I stopped. It failed me. Til this day, when I think of this medicine, I get nauseous and sick to my stomach. Its just awful.&lt;/div&gt;
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&lt;div&gt;July 4th spent in bed. flare up. but not bad enough for the hospital. later in the month, i had a flare up that was bad enough for yet another hospital visit. &lt;/div&gt;
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&lt;div&gt;I was on Prednisone for over 7 months. It is an awful medicine, yet it is wonderful at the same time. Its definitely an oxymoron. I gained so much weight I got in the worst depression about it ever. I have always been 125-135. Normal for my height and age. I ballooned up to the highest I ever was. My face got so round &amp;#8220;Moonface&amp;#8221; that I looked like a chipmunk. My self-esteem went out the window completely. I didnt wanna go out, take pictures, go to work, anything. I didnt want anyone to see me. No matter how much people told me I looked &amp;#8220;fine&amp;#8221;, I know I didnt. I also didnt feel fine. The last day I had to take it was my favorite day, and my scariest day. I was afraid of what was going to happen when I stopped. Would I flare up? Would I get sick? Would I be back in the hospital again? I didnt know. But I was so happy cause I would loose the &amp;#8220;water weight&amp;#8221;, my face would go back to normal and supposedly my weight. All were correct, but the weight. I lost a good amount but not enough to get me back to what I always was, and I&amp;#8217;m still not. I&amp;#8217;m still in a depression over it. But I&amp;#8217;m dealing with it. Most Crohn&amp;#8217;s patients loose weight, I haven&amp;#8217;t. Yes I&amp;#8217;m fortunate for it, but gaining it, I didnt expect. It also made my joints ache more then you could imagine. My knees, wrists and ankles hurt everyday, all day. Which led me to see a Rheumetologist, they are the HARDEST doctor to see and get an appointment for. I called in July and was seen in September! How crazy. My knees and wrists still hurt from time to time but they&amp;#8217;re getting better.&lt;/div&gt;
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&lt;div&gt;I&amp;#8217;m on Vitamin D and Calcium pills. They suck lol, at least the Vitamin D are gummies and delicious. Calcium, not so much. I have the beginning stages of osteoporosis. But I kind of expected that one. So I have to keep an eye out on that one too. &lt;/div&gt;
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&lt;div&gt;My current medicines: Remicade (every 6 weeks, 10mg); Dicyclomine; Klonopin; Zofran; Protonix; Levothyroxine; Fiorinal; Vicodin. &lt;/div&gt;
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&lt;div&gt;I went back into the hospital this year in Feburary. Man was I pissed. So was my doctor lol. Even though the Remicade has helped, it&amp;#8217;s not working to it&amp;#8217;s full potential. So we are giving it another shot or two, then deciding if we are going to change to Humira and see how that does. Like I&amp;#8217;ve said before I am not good with self injections lol, but apparently this one comes in a pen now. Still nervous about that. &lt;/div&gt;
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&lt;div&gt;Ever since I&amp;#8217;ve gotten out of the hospital, I&amp;#8217;ve had severe stomach pains and constant nausea. First we thought it was the Crohn&amp;#8217;s. So we got a CT Enterography, Endoscopy and Ultrasound (for the Gallbladder). We have yet to disucss the CT because I just got it done on 3/20. Endoscopy on 3/21, which came back good, nothing wrong there, which got my doctor concerned. He&amp;#8217;s thinking it could be something completely unrelated to the Crohn&amp;#8217;s, which wouldnt surprise me. Then I go for the Ultrasound on 3/22. I&amp;#8217;m kind of hoping its my Gallbladder or something so we can get it taken care of. I don&amp;#8217;t know how much more of this everyday pain and nausea I can take. I hate medicine as it is so I can only take so much til I either get sick of it or it just doesn&amp;#8217;t work.  &lt;/div&gt;
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&lt;div&gt;Since I was 17 I&amp;#8217;ve been in the hospital countless times. I&amp;#8217;ve been on so many different medications I can&amp;#8217;t remember them all. I&amp;#8217;ve also had an iron infusion at 18. &lt;/div&gt;
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&lt;div&gt;I think they main stress factor to cause my Crohn&amp;#8217;s to come full blown was when I lost half of my family. 8/04 Great-Grandmother (Sissy) died. 12/05 Grandmother (mommom), my best friend in the whole world, died. 11/06 my life long dog (Max) had to get put to sleep the day after my birthday. 2/07 Grandfather (poppop/step-grandpop) died. All back to back. Those 3 were always together. I was always with them. They were the greatest people I&amp;#8217;ve ever known. They helped make me into the person I am today. Most recently 6/11 my other Grandmother passed away. It just never gets any easier. Getting older SUCKS. I miss them all terribly and think about them every day. Every time something comes up I still want to go and tell them. I want to see them, hold them, hug them, just tell them one more time that I love them. People seem to take their Grandparents for granted. Please don&amp;#8217;t. Youll never have anyone in your life, ever like them. &lt;/div&gt;
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&lt;div&gt;Crohn&amp;#8217;s is different with every person. Some have it worse then others. I&amp;#8217;ve read many stories of those who have it worse. I wish I could just give you all a hug. I know mine isn&amp;#8217;t as bad as others, but it&amp;#8217;s still there.&lt;/div&gt;
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&lt;div&gt;I have certain family members and people telling me &amp;#8220;sure you&amp;#8217;re sick,  but theres someone out there worse then you&amp;#8221;. I&amp;#8217;m not saying that makes me mad, but it pisses me off. Yes I know there are people out there sicker then me. I feel bad for them. I like to think I am a very caring, compassionate person. But I am sick too. You (the ones telling me), are not. If it were up to me, I&amp;#8217;d heal everyone, even the common cold so everyone could experience life the same. But thats impossible. As much as we would all like cures, if they were found (which im sure some have been) the medical field would die out, and medicine would no longer be needed. &lt;/div&gt;
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&lt;div&gt;Having this disease has changed me. Not fully, but its changed me. Its made life a little more difficult. Right now its winning its fight with me, even though I am fighting as hard as I can. Its putting a rough toll on my 8+ year relationship with my boyfriend. He knows what I have now, he knows everything I go through, but its not easy on him either. I don&amp;#8217;t want to get into a lot of details cause thats not necessary. But I love him so much and I dont want to loose him over this, I know I wont because he loves me too, but sometimes I dont think its fair for him to have to go through this too. Theres days where Im laid up in bed, and I dont get to see him or hang out with him. He can go out every day and do anything he wants. Then theres me&amp;#8230;&amp;#8230;&lt;/div&gt;
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&lt;div&gt;My friends know too, the ones that need to, and now because of this, if its read, every one will know somewhat about whats going on. Theres times were I just eff it and go out and deal with whatever comes at it comes. I&amp;#8217;m tired of worrying about it. I have Crohn&amp;#8217;s Disease, the people I care most about know I have it and what comes along with it, and every single one of them accept it and are right there with me. Its to the point where I can even joke about it now. Some people probably dont understand but like the saying, when life throws/gives you lemons, you made lemonade. Sometimes I let the Crohns win, because simply I have to. When it wants to hit, it does. The pain mainly and everything else that goes along with it. &lt;/div&gt;
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&lt;div&gt;I just want to Thank everyone who has been by my side through this. Dealing with it along with me. Stress is my biggest trigger for a flare up, and granted thats known, people dont seem to not want to give me stress lol, from work, to my family, to my bf, to my friends, to myself. Then theres all the food I had to give up. Spaghetti (my favorite), pizza, anything with Red Sauce, peanut butter, fried food, greasy food, vegetables, most fruits, caffeine, coffee&amp;#8230;..I&amp;#8217;m still learning some things I can and can not eat. I&amp;#8217;m a huge foodie, I love food. But now I just have to be careful. Man do I miss spaghetti and pizza. &lt;/div&gt;
&lt;div&gt;&lt;/div&gt;
&lt;div&gt;&lt;/div&gt;
&lt;div&gt;Crohn&amp;#8217;s Disease and Colitis does not have enough awareness out there. Those commercials on TV, well I wont even get into them (im sure people with Crohns, Colitis, IBD, now where I am going with that). I&amp;#8217;m trying to get my story and my awareness out there. Hell, even some of my friends and family are too. It&amp;#8217;s come a long way since it was first discovered, but theres still a long way to go. It&amp;#8217;s a simple as someone reading about it, knowing someone with it, etc. I am no longer embarrased by my disease. I will freely talk about it, especially if asked. It is apart of me now and everyone just has to accept that. I have. There&amp;#8217;s still some things I am learning about it myself too. I have realized though, that everyone with this, sticks together. Thanks to Twitter and other sites I have found people with similiar stories to mine and its just comforting to know that they are there to talk to, and read their stories too. I have 2 particular people in mind (whom I wont mention b/c IDK how they would feel about it) but one is a girl and one is a guy. I follow them on Twitter, Tumblr, CrohnsDiseaseSN.com, Facebook, etc. Their stories have helped me so much and theyre going through so much more then I could imagine. Yet they are there for me, and others. They are doing things to help. Theyre fighting. I admire them, lots. Thank you guys!!&lt;/div&gt;
&lt;div&gt;&lt;/div&gt;
&lt;div&gt;&lt;/div&gt;
&lt;div&gt;I appreciate anyone that has really read this and understands somewhat of what I go through in a day. Not every day is the same. I have good and bad. I love my life, and the people in it. Yes I miss my pre-Crohn&amp;#8217;s life, but I also am thankful for how much stronger having this disease has made me and how much stronger it will only make me. Everything I go through with this takes its toll on me and beats me up, but I put on a smile and go about my day. I dont want people to know when I&amp;#8217;m weak. I live life to the fullest. I try to look at the positive in everything. Granted everyone has their bad days, they happen. Sorry for this being so long, and may seem rambling, but I had to get it out. I held a lot back and maybe in time I will let that out to. But this is just the top of it all. Every story helps. And this is also for the people who just dont know whats going on with me, now you have an idea&amp;#8230;&amp;#8230;.&lt;/div&gt;
&lt;/div&gt;
&lt;/div&gt;
&lt;/div&gt;
&lt;/div&gt;
&lt;/div&gt;</description><link>http://cshitz.tumblr.com/post/19700480338</link><guid>http://cshitz.tumblr.com/post/19700480338</guid><pubDate>Wed, 21 Mar 2012 18:56:31 -0400</pubDate><category>Crohns</category><category>Remicade</category><category>Health</category><category>Treatment</category><category>Struggle</category><category>Life</category><category>IBD</category><category>Hospital</category><category>Doctor</category><category>Friendship</category><category>Relationship</category><category>Family</category><category>Pain</category></item><item><title>Blogging or Whatever lol</title><description>&lt;p&gt;I&amp;#8217;ve decided I&amp;#8217;m going to write one HUGE/LONG blog about my journey with Crohn&amp;#8217;s Disease from the day I first had symptoms until now. I hope some will read it and understand better what I&amp;#8217;m going through and sort of what a day in the life of me is like. &lt;/p&gt;
&lt;p&gt;I know I&amp;#8217;m gonna miss some information along the way but its already kind of relieving to get it out. When I was first diagnosed I was lost and scared. Then I found other people on Twitter and other sites who have it too, or its &amp;#8220;sister&amp;#8221;. I actually have a friend who I reconnected with and then found out that they have Colitis. That was another thing that made it easier. To be able to talk to someone I know that went through what I am going through.&lt;/p&gt;
&lt;p&gt;Anyways&amp;#8230;.I&amp;#8217;m gonna try and write about things I go through and hopefully someone will read it, like I have read others, and feel a little better and not alone in this. We are all here for each other, here to help, listen, whatever. &lt;/p&gt;
&lt;p&gt;Every random thing, whether a picture, a quote, a story, a simple sentence helps. It seems to help others to write and all, so I will be trying it myself&amp;#8230;..&lt;/p&gt;
&lt;p&gt;We shall see lol..&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/19650230090</link><guid>http://cshitz.tumblr.com/post/19650230090</guid><pubDate>Tue, 20 Mar 2012 19:37:15 -0400</pubDate><category>Crohns</category><category>Blog</category><category>Writing</category></item><item><title>ROBOTS OR DINOSAURS?</title><description>&lt;p&gt;I dont like dinosaurs. Definitely Robots. &lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/19581244225</link><guid>http://cshitz.tumblr.com/post/19581244225</guid><pubDate>Mon, 19 Mar 2012 14:54:44 -0400</pubDate></item><item><title>Anyone taking Prednisone..</title><description>&lt;p&gt;Prednisone gives you the most awful taste possible, especially the after taste. I tried everything to cover it up and nothing worked. Even eating something after I still had that taste&amp;#8230;..I finally found something that works and thought I&amp;#8217;d share it with anyone who takes it or who takes any awful tasting medicine:&lt;/p&gt;
&lt;p&gt;Ensure! I take it with the Milk Chocolate flavor. It covers up the taste perfect for me. I take a little sip (dont swallow) pop the pill in, then drink. I&amp;#8217;m not 100% sure if its ok to take with Prednisone but it hasn&amp;#8217;t had any bad side effects for me. &lt;/p&gt;
&lt;p&gt;I also drink Ensure during flare ups or when I dont want to eat but I have to have something in my body. They come in multiple flavors. My favorite are the basics: Milk Chocolate, Vanilla and Strawberry.&lt;/p&gt;
&lt;p&gt;Its taste like a real milkshake, not that crappy chalky stuff the others taste like. &lt;/p&gt;
&lt;p&gt;Hope this helps anyone&amp;#8230;.&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/19580946937</link><guid>http://cshitz.tumblr.com/post/19580946937</guid><pubDate>Mon, 19 Mar 2012 14:47:31 -0400</pubDate><category>crohns</category><category>prednisone</category><category>medicine</category><category>ensure</category><category>bad taste</category></item><item><title>Crohns wins today</title><description>&lt;p&gt;Today I woke up at 430 for work. I was fine. Got dressed, left, got to work, etc. At work, BAM, horrible stomach pain. Figured it was just one and it would go away. An hour later, it didn&amp;#8217;t. I got sent home at 8. I got home and took pain medicine and took a nap. Now its 230 and I took another pain pill and feel so nauseous and hot I feel like I want to curl up in a corner and not move! I can&amp;#8217;t even think about taking my medicine cause of how nauseous I am. I&amp;#8217;m laying in bed, windows open (70 degrees out) and just wishing I could be outside doing something. Starting my garden, cleaning my car, playing with my dog. But nope, I am in bed, under covers, freezing, yet sweating, and with stomach pain so back I wanna rip it out. Today is no fun. Today Crohns wins. &lt;/p&gt;
&lt;p&gt;Tomorrow I go for a CT Enterography at 8 am. Wednesday I go for a Endoscopy. Thursday I go for an Ultrasound.&lt;/p&gt;
&lt;p&gt;I need to get better for these test. They determine the next step I have to take to try and control my Crohns, which has been active for over a year now. The flareups wont stop. &lt;/p&gt;
&lt;p&gt;Now I am going to stare out my window, and try to sleep. I want my nausea to go away&amp;#8230;.&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/19580692304</link><guid>http://cshitz.tumblr.com/post/19580692304</guid><pubDate>Mon, 19 Mar 2012 14:41:00 -0400</pubDate><category>Crohns</category><category>Nausea</category><category>Pain</category><category>Medicine</category></item><item><title>kinda sums up how i'm feeling today</title><description>&lt;p&gt;&lt;span lang="EN" xml:lang="EN"&gt;
&lt;p&gt;“I don’t feel myself today &lt;br/&gt;Just a figure in a big monopoly game &lt;br/&gt;Struggle is the price you pay &lt;br/&gt;You get just enough just to give it away &lt;br/&gt;I’m sinking but I’m floating away &lt;br/&gt;Throw me a line so I can anchor my pain &lt;br/&gt;The fabric is about to fray &lt;br/&gt;The fabric is about to fray &lt;br/&gt;&lt;br/&gt;Maybe you could take a look at yourself lately &lt;br/&gt;Maybe you could take a look at yourself lately &lt;br/&gt;Maybe you could take a look at yourself lately &lt;br/&gt;&lt;br/&gt;Things keep coming and I keep wondering &lt;br/&gt;I start feeling the walls close in &lt;br/&gt;Things keep coming and I keep stumbling &lt;br/&gt;I start feeling I’m strong enough to break &lt;br/&gt;Oh, I start feeling I’m strong enough to break &lt;br/&gt;&lt;br/&gt;Been running through my mind today &lt;br/&gt;Scenarios to add to your hypocrisy &lt;br/&gt;No one ever takes the blame &lt;br/&gt;But everyone is searching for a cure to the pain &lt;br/&gt;Nothing ever seems to change &lt;br/&gt;Oh, nothing ever seems to change &lt;br/&gt;We just play like broken records in a deaf man’s charade &lt;br/&gt;&lt;br/&gt;Maybe you could take a look at yourself lately &lt;br/&gt;Maybe you could take a look at yourself lately &lt;br/&gt;Maybe you could take a look at yourself lately &lt;br/&gt;&lt;br/&gt;Things keep coming and I keep wondering &lt;br/&gt;I start feeling the walls close in &lt;br/&gt;Things keep coming and I keep stumbling &lt;br/&gt;I start feeling I’m strong enough to break &lt;br/&gt;Oh, I start feeling I’m strong enough to break &lt;br/&gt;&lt;br/&gt;Carry on just a pawn and the same old song &lt;br/&gt;I’m still holding on &lt;br/&gt;&lt;br/&gt;The fabric is about to fray &lt;br/&gt;&lt;br/&gt;Maybe you could take a look at yourself lately &lt;br/&gt;Maybe you could take a look at yourself lately &lt;br/&gt;&lt;br/&gt;Things keep coming and I keep wondering &lt;br/&gt;I start feeling the walls close in &lt;br/&gt;Things keep coming and I keep stumbling &lt;br/&gt;I start feeling I’m strong enough &lt;br/&gt;Things keep coming and I keep wondering &lt;br/&gt;I start feeling the walls close in &lt;br/&gt;Things keep coming and I keep stumbling &lt;br/&gt;I start feeling I’m strong enough to break &lt;br/&gt;Oh, I start feeling I’m strong enough to break”&lt;/p&gt;
&lt;/span&gt;&lt;/p&gt;
&lt;p&gt;&amp;#8212;-Nothing makes me feel better then listening to Hanson, all day. Oh the things their music has gotten me through. Love them and always will!&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/11836550860</link><guid>http://cshitz.tumblr.com/post/11836550860</guid><pubDate>Sun, 23 Oct 2011 17:53:02 -0400</pubDate><category>hanson</category><category>lyrics</category><category>underneath</category></item><item><title>Taken with instagram</title><description>&lt;img src="http://24.media.tumblr.com/tumblr_ls5kyf7DSS1qiww97o1_500.jpg"/&gt;&lt;br/&gt;&lt;br/&gt;&lt;p&gt;Taken with &lt;a href="http://instagr.am" target="_blank"&gt;instagram&lt;/a&gt;&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/10704523578</link><guid>http://cshitz.tumblr.com/post/10704523578</guid><pubDate>Mon, 26 Sep 2011 19:23:03 -0400</pubDate></item><item><title>Jasper Ramsay</title><description>&lt;iframe src="//www.tumblr.com/video/cshitz/10033897589/400" id="tumblr_video_iframe_10033897589" class="tumblr_video_iframe" width="400" height="300" style="display:block;background-color:transparent;overflow:hidden;" allowTransparency="true" frameborder="0" scrolling="no" webkitAllowFullScreen mozallowfullscreen allowFullScreen&gt;&lt;/iframe&gt;&lt;br/&gt;&lt;br/&gt;&lt;p&gt;Jasper Ramsay&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/10033897589</link><guid>http://cshitz.tumblr.com/post/10033897589</guid><pubDate>Sat, 10 Sep 2011 09:34:36 -0400</pubDate></item><item><title>One of my FAVORITE scenes (and episodes) of Supernatural. Love...</title><description>&lt;iframe width="400" height="299" src="http://www.youtube.com/embed/RN9LF-YKqlI?wmode=transparent&amp;autohide=1&amp;egm=0&amp;hd=1&amp;iv_load_policy=3&amp;modestbranding=1&amp;rel=0&amp;showinfo=0&amp;showsearch=0" frameborder="0" allowfullscreen&gt;&lt;/iframe&gt;&lt;br/&gt;&lt;br/&gt;&lt;p&gt;One of my FAVORITE scenes (and episodes) of Supernatural. Love Love Love Dean :)&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/8450562668</link><guid>http://cshitz.tumblr.com/post/8450562668</guid><pubDate>Wed, 03 Aug 2011 20:49:06 -0400</pubDate></item><item><title>Meet T.C.</title><description>&lt;iframe width="400" height="300" src="http://www.youtube.com/embed/cZ39ECA8zpY?wmode=transparent&amp;autohide=1&amp;egm=0&amp;hd=1&amp;iv_load_policy=3&amp;modestbranding=1&amp;rel=0&amp;showinfo=0&amp;showsearch=0" frameborder="0" allowfullscreen&gt;&lt;/iframe&gt;&lt;br/&gt;&lt;br/&gt;&lt;p&gt;Meet T.C.&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/8450523743</link><guid>http://cshitz.tumblr.com/post/8450523743</guid><pubDate>Wed, 03 Aug 2011 20:48:03 -0400</pubDate></item><item><title>Had a fabulous 3 days off of work. I never get 3 days in a row! Fridays are usually my Mondays and...</title><description>&lt;p&gt;Had a fabulous 3 days off of work. I never get 3 days in a row! Fridays are usually my Mondays and that makes me HATE the weekends. I still work every weekend and it still sucks.&lt;/p&gt;
&lt;p&gt;Supernatural was AWESOME tonight! I loved it!!! Possibly one of my favorite episodes.&lt;/p&gt;
&lt;p&gt;Friday Night Lights was a good episode too. This final season looks like its going to be a good one!&lt;/p&gt;
&lt;p&gt;Now I am off to bed only to wake up at 5 am and have a shitty work day because the hotel business sucks!! Night!!&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/4853993924</link><guid>http://cshitz.tumblr.com/post/4853993924</guid><pubDate>Fri, 22 Apr 2011 22:29:00 -0400</pubDate><category>supernatural</category><category>friday night lights</category><category>work</category></item><item><title>Hanson= </title><description>&lt;a href="http://teamcoco.com/content/hanson-performs-their-catchy-new-single-give-little"&gt;Hanson= &lt;/a&gt;</description><link>http://cshitz.tumblr.com/post/4640882792</link><guid>http://cshitz.tumblr.com/post/4640882792</guid><pubDate>Fri, 15 Apr 2011 17:07:30 -0400</pubDate></item><item><title>:)</title><description>&lt;p&gt;:)&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/4454359209</link><guid>http://cshitz.tumblr.com/post/4454359209</guid><pubDate>Fri, 08 Apr 2011 21:21:58 -0400</pubDate></item><item><title>Saturday</title><description>&lt;p&gt;My first Saturday off of work in like a zillion months. It&amp;#8217;s beautiful out and the Phillies play at 7:05. I did absolutely nothing today and loved it! Back to the craziness of Hotel life tomorrow :(&lt;/p&gt;</description><link>http://cshitz.tumblr.com/post/4291447238</link><guid>http://cshitz.tumblr.com/post/4291447238</guid><pubDate>Sat, 02 Apr 2011 16:23:50 -0400</pubDate></item><item><title>"What lies behind us, and what lies before us, are tiny matters compared to what lies within us."</title><description>“What lies behind us, and what lies before us, are tiny matters compared to what lies within us.”</description><link>http://cshitz.tumblr.com/post/4172908994</link><guid>http://cshitz.tumblr.com/post/4172908994</guid><pubDate>Mon, 28 Mar 2011 20:59:05 -0400</pubDate></item></channel></rss>
